23 signs you grew up with ehlers-danlos syndrome:

What exactly is Ehlers-Danlos syndrome?

Ehler-Danlos syndrome is a group of rare inherited conditions that affect the body’s connective tissues, especially the skin, joints, and blood vessels.

The proteins and other substances that make up connective tissues give them their elasticity.

People with Ehlers-Danlos syndrome have collagen that isn’t as strong as it should be.

Even though people are born with Ehlers-Danlos syndrome, it may take years to figure out what is wrong.

Different kinds of Ehlers-Danlos syndrome

There are 13 different kinds of Ehlers-Danlos syndrome (EDS), and most of them are not very common.

Most people with Ehlers-Danlos syndrome have hEDS, which stands for hypermobile EDS.

Here are some signs of HED:

  • Hypermobility of joints
  • Unstable joints that tend to dislocate easily
  • Clicking and pain in the joints
  • Easy skin bruising
  • Digestive problems like heartburn
  • Dizziness and increased heart rate after standing up
  • Urinary incontinence

There is no way to find out if someone has HIV.

Most of the time, the diagnosis is based on the person’s past, their symptoms, and a physical exam.

The classical, vascular, and kyphoscoliotic types of EDS are also pretty common.

23 signs you grew up with ehlers-danlos syndrome

Is there a gene for Ehlers-Danlos syndrome?

Ehlers–Danlos syndrome is caused by genes. There are more than 20 genes that have been linked to EDS.

Some genes have been linked to Ehlers-Danlos syndrome. These are some of them:

  • COL1A1
  • COL1A2
  • COL3A1
  • COL5A2

These genes tell the body how to make different kinds of collagen.

Changes (variants) in these genes can cause problems with the way collagen is made or used, which can make bones, skin, or other parts of the body weak.

This is what makes Ehlers-Danlos syndrome look the way it does.

Different changes in collagen genes cause each type of EDS.

  • 23 Signs That You Grew Up With Ehlers-Danlos Syndrome
  • Joint pain, bruising easily, and joints that move too much are all common signs of EDS.
  • Some people may have these symptoms because of an underlying medical condition, but for others, they may be signs of Ehlers-Danlos syndrome.

23 Signs You Grew Up With Ehlers-Danlos Syndrome

Hypermobile joints, frequent bruising, and painful joints are common symptoms of EDS.

While for some, it may be related to an underlying medical condition, these may be signs of Ehler-Danlos syndrome for a few people.

23 commonly observed signs of Ehler-Danlos

  1. High flexibility of joints
  2. Clumsiness
  3. Frequent tripping or falling
  4. Frequent joint dislocations, especially of the knee or elbow
  5. Ability to bend fingers or thumb backward
  6. Increased frequency of fracturing bones
  7. Hyperextended knees
  8. Feeling you are double-jointed
  9. Fear of relaxing your joints for fear of dislocation
  10. Frequent dizzy or fainting spells
  11. Fewer wrinkles
  12. Frequent foot problems, especially pain and discomfort
  13. Digestive issues like bloating, diarrhea, nausea, acid reflux
  14. Extreme fatigue
  15. Holding a pen or pencil differently to avoid pain, discomfort, or dislocation of your finger joint
  16. Take longer to complete everyday activities
  17. Increased likelihood of migraine, vision issues, or postural orthostatic tachycardia syndrome (POTS)
  18. Chronic body pain at a young age
  19. Running with a different gait than others
  20. Picky about the clothing you wear to protect your sensitive skin
  21. Joints make a clicking or popping noise
  22. Growing pain in the ankles
  23. Inability to run fast

23 of the most common signs of Ehlers-Danlos

Treatment for Ehlers-Danlos syndromes

Ehlers-Danlos syndrome can’t be cured.

The goal of treatment is to control the symptoms and prevent them from getting worse.

Here are some ways to deal with Ehlers-Danlos syndrome:

Medication: Most of the time, over-the-counter pain relievers are the mainstay of EDS treatment.
In the case of serious injuries, you may need to take stronger medicines.

People with Ehlers-Danlos syndrome have fragile blood vessels. So, their doctors might want to give them medicine to lower their blood pressure.

With Enhler Danlos, joints with weak connective tissue are more likely to pop out of place.
Physical therapy may be suggested to build muscles and keep joints stable.

Surgery: People who have broken blood vessels or organs or who keep dislocating their joints may need surgery.
People with EDS usually have a lot of help from doctors and nurses as they deal with the disease.

Occupational therapists, physiotherapists, and counselors are usually on the healthcare team for people with EDS.

People who go to genetic counseling may learn more about their condition, how it is passed down, and the chance that they will pass it on to their children.

There is no one way to treat EDS, but many of the symptoms can be controlled.

Summary: Signs You Grew Up With Ehlers-Danlos Syndrome

  1. Ehler-Danlos syndrome (EDS) is a group of rare inherited disorders that affect the body’s connective tissues.
  2. People with Ehler-Danlos syndrome are born with it, but their symptoms may take years or, sometimes, decades to show.
  3. There are around 13 different types of Ehler-Danlos syndrome, and hypermobility EDS (hEDS) is the most common type.
  4. Ehler-Danlos syndrome is a genetic condition; to date, over 20 genes, including COL1A1 and COL1A2, have been associated with the condition.
  5. Most people with Ehler-Danlos are unaware of their condition as they are unable to spot signs like easy skin bruising and joint dislocation.


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